Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya)
Thalassemia is a hereditary disease that until now there is no effective treatment for healing, this disease is not contagious and generally attacks children with a variety of typical symptoms that can be detected since the age of a toddler (under five years). In the city of Surabaya there were 5...
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Budapest International Research and Critics University-Journal (BIRCU-Publisher)
2018
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id-langga.1252552023-05-12T02:48:33Z https://repository.unair.ac.id/125255/ Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) Saputra Adiwijaya, - Dor Valda A Aritonang, - Mustain Mashud, - H Social Sciences HM Sociology Thalassemia is a hereditary disease that until now there is no effective treatment for healing, this disease is not contagious and generally attacks children with a variety of typical symptoms that can be detected since the age of a toddler (under five years). In the city of Surabaya there were 520 sufferers, this number was based on data from the administrators gathered in the organization of the POPTI (Association of Indonesian thalassemia Parents) in the city of Surabaya. There is a pattern of empowerment carried out by the management of POPTI in Surabaya to parents whose children suffer from thalassemia, as well as to adult patients. The thing to do is to conduct routine assistance at Dr. Soetomo Surabaya hospital every Tuesday and Wednesday. The purpose of this study is to describe and analyze the pattern of empowerment carried out by POPTI (Association of Parents with thalassemia Indonesia) in Surabaya in the treatment of thalassemia in Surabaya. This study used a qualitative method with a descriptive approach, with the primary data of the study obtained through in-depth interviews with 9 (nine) parents whose children suffered from thalassemia as key informants, the details of which consisted of 3 (three) POPTI administrators in Surabaya and 6 (six) members POPTI city of Surabaya. Based on the results of the analysis and discussion, the conclusions of the study are: 1) The joining of parents in the POPTI city of Surabaya provides many benefits in the care of their children who suffer from thalassemia in Dr. Soetomo Hospital Surabaya; 2) The form of empowerment patterns carried out by parents of elderly patients who are members of the POPTI container in Surabaya starts with routine mentoring which results in a shared value for parents; 3) There is a tiered learning pattern from patients who are considered senior to teach other patients in terms of understanding and ability to understand the flow of care services to thalassemia patients. Budapest International Research and Critics University-Journal (BIRCU-Publisher) 2018-12 Article PeerReviewed text en https://repository.unair.ac.id/125255/1/19.%20Empowerment%20Pattern.pdf text en https://repository.unair.ac.id/125255/3/19.%20validasi%20empowerment%20pattern.pdf text en https://repository.unair.ac.id/125255/5/19.%20Turnitin%20Empowerment%20Pattern.pdf Saputra Adiwijaya, - and Dor Valda A Aritonang, - and Mustain Mashud, - (2018) Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya). Budapest International Research and Critics Institute-Journal, 1 (4). pp. 289-298. ISSN p-ISSN: 2615-1715, e-ISSN: 2615-3076 https://www.bircu-journal.com/index.php/birci/article/view/121 |
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H Social Sciences HM Sociology Saputra Adiwijaya, - Dor Valda A Aritonang, - Mustain Mashud, - Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
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Thalassemia is a hereditary disease that until now there is no effective treatment
for healing, this disease is not contagious and generally attacks children with a variety of
typical symptoms that can be detected since the age of a toddler (under five years). In the city
of Surabaya there were 520 sufferers, this number was based on data from the administrators
gathered in the organization of the POPTI (Association of Indonesian thalassemia Parents)
in the city of Surabaya. There is a pattern of empowerment carried out by the management of
POPTI in Surabaya to parents whose children suffer from thalassemia, as well as to adult
patients. The thing to do is to conduct routine assistance at Dr. Soetomo Surabaya hospital
every Tuesday and Wednesday. The purpose of this study is to describe and analyze the
pattern of empowerment carried out by POPTI (Association of Parents with thalassemia
Indonesia) in Surabaya in the treatment of thalassemia in Surabaya. This study used a
qualitative method with a descriptive approach, with the primary data of the study obtained
through in-depth interviews with 9 (nine) parents whose children suffered from thalassemia
as key informants, the details of which consisted of 3 (three) POPTI administrators in
Surabaya and 6 (six) members POPTI city of Surabaya. Based on the results of the analysis
and discussion, the conclusions of the study are: 1) The joining of parents in the POPTI city
of Surabaya provides many benefits in the care of their children who suffer from thalassemia
in Dr. Soetomo Hospital Surabaya; 2) The form of empowerment patterns carried out by
parents of elderly patients who are members of the POPTI container in Surabaya starts with
routine mentoring which results in a shared value for parents; 3) There is a tiered learning
pattern from patients who are considered senior to teach other patients in terms of
understanding and ability to understand the flow of care services to thalassemia patients. |
format |
Article PeerReviewed |
author |
Saputra Adiwijaya, - Dor Valda A Aritonang, - Mustain Mashud, - |
author_facet |
Saputra Adiwijaya, - Dor Valda A Aritonang, - Mustain Mashud, - |
author_sort |
Saputra Adiwijaya, - |
title |
Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
title_short |
Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
title_full |
Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
title_fullStr |
Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
title_full_unstemmed |
Empowerment Pattern for Thalasemi Patients in Dr. Soetomo Hospital Surabaya (Study of the Association of Parents with Thalassemia Indonesia, Surabaya) |
title_sort |
empowerment pattern for thalasemi patients in dr. soetomo hospital surabaya (study of the association of parents with thalassemia indonesia, surabaya) |
publisher |
Budapest International Research and Critics University-Journal (BIRCU-Publisher) |
publishDate |
2018 |
url |
https://repository.unair.ac.id/125255/1/19.%20Empowerment%20Pattern.pdf https://repository.unair.ac.id/125255/3/19.%20validasi%20empowerment%20pattern.pdf https://repository.unair.ac.id/125255/5/19.%20Turnitin%20Empowerment%20Pattern.pdf https://repository.unair.ac.id/125255/ https://www.bircu-journal.com/index.php/birci/article/view/121 |
_version_ |
1767194155511971840 |