Self-care model application to improve self-care agency, self-care activities, and quality of life in people with systemic lupus erythematosus

• Main Authors: Kusnanto, Ni Putu Wulan Purnama Sari, Harmayetty, Ferry Efendi, Joko Gunawan
• Format: Article PeerReviewed
• Language: English; English; English
• Published: Elsevier 2018
• Subjects: RT1-120 Nursing
• Online Access: http://repository.unair.ac.id/85644/1/Self-care%20model%20application%20to%20improve%20self-care%20agency%2C%20self-care.pdf; http://repository.unair.ac.id/85644/3/Self-care%20model%20application%20to%20improve%20self-care%20agency%2C%20self-care%20activities%2C%20and%20quality%20of%20life%20in%20people%20with%20systemic%20lupus%20erythematosus.pdf; http://repository.unair.ac.id/85644/7/Self%20care%20model%20application%20to13122019.pdf; http://repository.unair.ac.id/85644/; https://www.sciencedirect.com/science/article/pii/S1658361218300842
• Institution: Universitas Airlangga

Objectives: This study aimed to examine the effect of the application of a self-care model to improve self-care Agency (SCA), self-care operation, and quality of life (QoL) in patients with systemic lupus erythematosus (SLE). Methods: This study employed a pre-experimental design with one pretest-posttest group. Thirty-six respondents were selected through total sampling. The experimental group was provided self-care management training, followed by four weekly home visits. Self-care agency was measured with the self-care agency scale, the other variables through self-rated abilities on the health practices scale and Lupus quality inventory. Data were analysed using paired t-tests with a < 0.05. Results: SLE was common in actively working married women of childbearing age, most of whom had had SLE for 1e2 years (33.3%), with arthritis being the most common symptom (reported by 61.1%). The major flare trigger factor was physical stress (66.7%), resulting in fatigue. On average, the self-care model was able to improve SCA by 19.93%, self-care operation by 17.53%, and QoL by 12.19%. It was significantly effective in enhancing SCA, self-care operation, and QoL in patients with SLE (p < 0.001). Conclusions: The application of Orem’s self-care model is effective in improving SCA, self-care, and QoL, and this study provides evidence of the benefits of its use in the nursing care of patients with SLE in a community setting. Health care providers should incorporate Orem’s selfcare model in nursing care to enhance SCA, self-care, and QoL in patients with SLE.