Carer Experience with Children with Down Syndrome
This paper explores the experiences and coping approaches of Down syndrome carers resulting from in-depth interviews among five families with children with Down syndrome in Kuala Terengganu. The purpose of the interviews was to examine family carers’ experiences and get in touch with the child....
Saved in:
| Main Authors: | , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
2018
|
| Subjects: | |
| Online Access: | http://eprints.unisza.edu.my/6191/1/FH02-FP-18-18030.pdf http://eprints.unisza.edu.my/6191/ |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| Institution: | Universiti Sultan Zainal Abidin |
| Language: | English |
| Summary: | This paper explores the experiences and coping
approaches of Down syndrome carers resulting from
in-depth interviews among five families with children
with Down syndrome in Kuala Terengganu. The
purpose of the interviews was to examine family
carers’ experiences and get in touch with the child. The
paper specifically focuses on the issues of tolerance,
sacrifice and attention in handling such children and
coping with adaptation to the role of carer. The findings
reveal that for the majority of family carers, their
experience was one of constant searching for support
and information. The anxiety and frustration associated
with unpredictable and irregular support and a lack of
information were major sources of concern for the
carers in the study. However, carers were found to use
a number of positive and negative coping approaches to
deal with the pressure associated with their caregiving
role. The study also concluded that the benefits of
knowing a person with Down syndrome may extend
beyond the immediate family members and into the
community. |
|---|