Challenges faced by parents of children with autism spectrum disorder in Malaysia

• Main Authors: Chu, Shin Ying, Mohd. Normal, Siti Nor Syamim Aqila, McConnell, Grace E., Tan, Joo Siang, Dhillon Joginder Singh, Susheel Kaur
• Format: Article
• Published: Taylor and Francis Ltd. 2020
• Subjects: H Social Sciences (General); L Education (General)
• Online Access: http://eprints.utm.my/id/eprint/89711/; http://dx.doi.org/10.1080/2050571X.2018.1548678
• Institution: Universiti Teknologi Malaysia

Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.