Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults

Background: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by...

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Main Authors: Troya, M. Isabela, Chew-Graham, Carolyn A., Babatunde, Opeyemi, Bartlam, Bernadette, Higginbottom, Adele, Dikomitis, Lisa
Other Authors: Lee Kong Chian School of Medicine (LKCMedicine)
Format: Article
Language:English
Published: 2020
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Online Access:https://hdl.handle.net/10356/142378
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Institution: Nanyang Technological University
Language: English
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spelling sg-ntu-dr.10356-1423782020-11-01T05:13:29Z Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults Troya, M. Isabela Chew-Graham, Carolyn A. Babatunde, Opeyemi Bartlam, Bernadette Higginbottom, Adele Dikomitis, Lisa Lee Kong Chian School of Medicine (LKCMedicine) Family Medicine & Primary Care Science::Medicine Aged Patient Participation Background: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by a Patient Public Involvement Engagement (PPIE) group, who contributed to its development. Aims: Critically reflect on the process, potential impact and identify challenges and opportunities in involving robust PPIE in a doctoral study. Methods: Three PPIE members contributed to a systematic review (SR) and a qualitative study through a series of four workshops to meet the aims of the study. PPIE contributed to developing the SR review questions, protocol, data analysis and dissemination of findings. For the qualitative study, they helped develop research questions, protocol, public‐facing documentation, recruitment strategies and data analysis. Involvement followed the GRIPP2‐SF reporting checklist. Results: PPIE enhanced methodological rigour, data analysis, interpretation and dissemination of findings. Challenges included lack of ethical guidance, time‐related pressures and ensuring support for PPIE members. These were successfully managed through ongoing dialogue and regular communication. Conclusions: PPIE can enhance the quality and depth of doctoral research, as lived experiences shared by PPIE members add to research's components. Exposing early‐career researchers to PPIE can build research cultures sensitive to PPIE's potential contribution and develop the expertise needed to avoid tokenistic involvement. Capturing lay perspectives is essential in mental health research to ensure research findings are accessible and that findings inform clinical practice. However, clear guidance on the ethical dimensions to PPIE is needed. Published version 2020-06-19T08:09:07Z 2020-06-19T08:09:07Z 2019 Journal Article Troya, M. I., Chew-Graham, C. A., Babatunde, O., Bartlam, B., Higginbottom, A., & Dikomitis, L. (2019). Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults. Health Expectations, 22(4), 617-631. doi:10.1111/hex.12917 1369-6513 https://hdl.handle.net/10356/142378 10.1111/hex.12917 31131529 2-s2.0-85067369910 4 22 617 631 en Health Expectations © 2019 The Author(s). Health Expectations. Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. application/pdf
institution Nanyang Technological University
building NTU Library
continent Asia
country Singapore
Singapore
content_provider NTU Library
collection DR-NTU
language English
topic Science::Medicine
Aged
Patient Participation
spellingShingle Science::Medicine
Aged
Patient Participation
Troya, M. Isabela
Chew-Graham, Carolyn A.
Babatunde, Opeyemi
Bartlam, Bernadette
Higginbottom, Adele
Dikomitis, Lisa
Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
description Background: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by a Patient Public Involvement Engagement (PPIE) group, who contributed to its development. Aims: Critically reflect on the process, potential impact and identify challenges and opportunities in involving robust PPIE in a doctoral study. Methods: Three PPIE members contributed to a systematic review (SR) and a qualitative study through a series of four workshops to meet the aims of the study. PPIE contributed to developing the SR review questions, protocol, data analysis and dissemination of findings. For the qualitative study, they helped develop research questions, protocol, public‐facing documentation, recruitment strategies and data analysis. Involvement followed the GRIPP2‐SF reporting checklist. Results: PPIE enhanced methodological rigour, data analysis, interpretation and dissemination of findings. Challenges included lack of ethical guidance, time‐related pressures and ensuring support for PPIE members. These were successfully managed through ongoing dialogue and regular communication. Conclusions: PPIE can enhance the quality and depth of doctoral research, as lived experiences shared by PPIE members add to research's components. Exposing early‐career researchers to PPIE can build research cultures sensitive to PPIE's potential contribution and develop the expertise needed to avoid tokenistic involvement. Capturing lay perspectives is essential in mental health research to ensure research findings are accessible and that findings inform clinical practice. However, clear guidance on the ethical dimensions to PPIE is needed.
author2 Lee Kong Chian School of Medicine (LKCMedicine)
author_facet Lee Kong Chian School of Medicine (LKCMedicine)
Troya, M. Isabela
Chew-Graham, Carolyn A.
Babatunde, Opeyemi
Bartlam, Bernadette
Higginbottom, Adele
Dikomitis, Lisa
format Article
author Troya, M. Isabela
Chew-Graham, Carolyn A.
Babatunde, Opeyemi
Bartlam, Bernadette
Higginbottom, Adele
Dikomitis, Lisa
author_sort Troya, M. Isabela
title Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
title_short Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
title_full Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
title_fullStr Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
title_full_unstemmed Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
title_sort patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
publishDate 2020
url https://hdl.handle.net/10356/142378
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