Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial

Objective: Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Discl...

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Main Authors: Hazell, Cassie M., Jones, Christina J., Pandey, Aparajita, Smith, Helen Elizabeth
Other Authors: Lee Kong Chian School of Medicine (LKCMedicine)
Format: Article
Language:English
Published: 2021
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Online Access:https://hdl.handle.net/10356/146994
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Institution: Nanyang Technological University
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spelling sg-ntu-dr.10356-1469942023-03-05T16:47:32Z Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial Hazell, Cassie M. Jones, Christina J. Pandey, Aparajita Smith, Helen Elizabeth Lee Kong Chian School of Medicine (LKCMedicine) Science::Medicine Recruitment Retention Objective: Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Disclosure) that has been shown to improve wellbeing in other populations. Although we reached our recruitment target, we encountered several barriers that made recruitment slower than anticipated. This paper synthesises the process data collected during the C4C trial that relates to the barriers to recruiting and retaining psychosis carers. Results: We encountered four main carer-specific barriers to the recruitment and retention of participants in our study. These were: (1) poor relationship with mental health clinicians, (2) conflicting with the care recipient’s (CR) needs, (3) lack of spare time, and (4) lack of services for mental health carers. The interventions to assist carers need to be informed by robust evidence and this requires trials that reach their recruitment targets. By sharing our practical experiences other researchers and clinicians can modify their practices to minimise recruitment difficulties and delay. Published version 2021-03-18T08:34:04Z 2021-03-18T08:34:04Z 2019 Journal Article Hazell, C. M., Jones, C. J., Pandey, A. & Smith, H. E. (2019). Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial. BMC Research Notes, 12(1). https://dx.doi.org/10.1186/s13104-019-4832-9 1756-0500 0000-0001-5868-9902 https://hdl.handle.net/10356/146994 10.1186/s13104-019-4832-9 31847874 2-s2.0-85076864336 1 12 en BMC Research Notes © 2019 The Author(s). This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. application/pdf
institution Nanyang Technological University
building NTU Library
continent Asia
country Singapore
Singapore
content_provider NTU Library
collection DR-NTU
language English
topic Science::Medicine
Recruitment
Retention
spellingShingle Science::Medicine
Recruitment
Retention
Hazell, Cassie M.
Jones, Christina J.
Pandey, Aparajita
Smith, Helen Elizabeth
Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
description Objective: Carers play an important role within the UK mental health system. Those carers who support persons with psychosis can experience a reduction in their own physical and mental health. As part of the Caring for Caregivers (C4C) trial, we piloted a writing intervention (Positive Written Disclosure) that has been shown to improve wellbeing in other populations. Although we reached our recruitment target, we encountered several barriers that made recruitment slower than anticipated. This paper synthesises the process data collected during the C4C trial that relates to the barriers to recruiting and retaining psychosis carers. Results: We encountered four main carer-specific barriers to the recruitment and retention of participants in our study. These were: (1) poor relationship with mental health clinicians, (2) conflicting with the care recipient’s (CR) needs, (3) lack of spare time, and (4) lack of services for mental health carers. The interventions to assist carers need to be informed by robust evidence and this requires trials that reach their recruitment targets. By sharing our practical experiences other researchers and clinicians can modify their practices to minimise recruitment difficulties and delay.
author2 Lee Kong Chian School of Medicine (LKCMedicine)
author_facet Lee Kong Chian School of Medicine (LKCMedicine)
Hazell, Cassie M.
Jones, Christina J.
Pandey, Aparajita
Smith, Helen Elizabeth
format Article
author Hazell, Cassie M.
Jones, Christina J.
Pandey, Aparajita
Smith, Helen Elizabeth
author_sort Hazell, Cassie M.
title Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
title_short Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
title_full Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
title_fullStr Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
title_full_unstemmed Barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the Caring for Caregivers (C4C) trial
title_sort barriers to recruiting and retaining psychosis carers : a case study on the lessons learned from the caring for caregivers (c4c) trial
publishDate 2021
url https://hdl.handle.net/10356/146994
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