An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia
Identification of one's status as a BRCA1/2 pathogenic variant carrier often marks the start of navigating challenging decisions related to cancer risk management and result disclosure. Carriers report unmet informational needs, but studies have yet to explore the specific aspects of and how be...
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sg-ntu-dr.10356-1483552023-03-05T16:49:11Z An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia Yuen, Jeanette Fung, Si Ming Sia, Chin Leong Venkatramani, Mallika Shaw, Tarryn Courtney, Eliza Li, Shao-Tzu Chiang, Jianbang Tan, Veronique Kiak-Mien Tan, Benita Kiat-Tee Ngeow, Joanne Lee Kong Chian School of Medicine (LKCMedicine) Science::Medicine BRCA1/2 Informational Needs Identification of one's status as a BRCA1/2 pathogenic variant carrier often marks the start of navigating challenging decisions related to cancer risk management and result disclosure. Carriers report unmet informational needs, but studies have yet to explore the specific aspects of and how best to fulfill these needs. This study aims to explore the informational needs of BRCA1/2 pathogenic variant carriers in Asia to inform for the design of educational materials to support risk management decision-making. Published version 2021-05-04T03:47:50Z 2021-05-04T03:47:50Z 2020 Journal Article Yuen, J., Fung, S. M., Sia, C. L., Venkatramani, M., Shaw, T., Courtney, E., Li, S., Chiang, J., Tan, V. K., Tan, B. K. & Ngeow, J. (2020). An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia. Hereditary Cancer in Clinical Practice, 18(1). https://dx.doi.org/10.1186/s13053-020-00154-x 1897-4287 0000-0003-1558-3627 https://hdl.handle.net/10356/148355 10.1186/s13053-020-00154-x 33110458 2-s2.0-85093973689 1 18 en Hereditary Cancer in Clinical Practice © 2020 The Author(s). This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visithttp://creativecommons.org/licenses/by/4.0/.The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. application/pdf |
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Nanyang Technological University |
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NTU Library |
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Asia |
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Singapore Singapore |
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English |
| topic |
Science::Medicine BRCA1/2 Informational Needs |
| spellingShingle |
Science::Medicine BRCA1/2 Informational Needs Yuen, Jeanette Fung, Si Ming Sia, Chin Leong Venkatramani, Mallika Shaw, Tarryn Courtney, Eliza Li, Shao-Tzu Chiang, Jianbang Tan, Veronique Kiak-Mien Tan, Benita Kiat-Tee Ngeow, Joanne An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| description |
Identification of one's status as a BRCA1/2 pathogenic variant carrier often marks the start of navigating challenging decisions related to cancer risk management and result disclosure. Carriers report unmet informational needs, but studies have yet to explore the specific aspects of and how best to fulfill these needs. This study aims to explore the informational needs of BRCA1/2 pathogenic variant carriers in Asia to inform for the design of educational materials to support risk management decision-making. |
| author2 |
Lee Kong Chian School of Medicine (LKCMedicine) |
| author_facet |
Lee Kong Chian School of Medicine (LKCMedicine) Yuen, Jeanette Fung, Si Ming Sia, Chin Leong Venkatramani, Mallika Shaw, Tarryn Courtney, Eliza Li, Shao-Tzu Chiang, Jianbang Tan, Veronique Kiak-Mien Tan, Benita Kiat-Tee Ngeow, Joanne |
| format |
Article |
| author |
Yuen, Jeanette Fung, Si Ming Sia, Chin Leong Venkatramani, Mallika Shaw, Tarryn Courtney, Eliza Li, Shao-Tzu Chiang, Jianbang Tan, Veronique Kiak-Mien Tan, Benita Kiat-Tee Ngeow, Joanne |
| author_sort |
Yuen, Jeanette |
| title |
An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| title_short |
An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| title_full |
An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| title_fullStr |
An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| title_full_unstemmed |
An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia |
| title_sort |
in-depth exploration of the post-test informational needs of brca1 and brca2 pathogenic variant carriers in asia |
| publishDate |
2021 |
| url |
https://hdl.handle.net/10356/148355 |
| _version_ |
1759858121592799232 |