Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates?
Purpose Consideration of health-related quality of life (HRQoL) and wellbeing outcomes is important to guide healthcare services for youth with obesity, yet youth perspectives may difer from their parents. This study compared youth and parental HRQoL reports and evaluated levels of concordance acr...
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sg-ntu-dr.10356-1611972022-08-19T04:02:04Z Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? Ooi, Delicia Shu Qin Loke, Kah Yin Ho, Cindy Wei Li Lim, Yvonne Yijuan Tay, Veronica Karuppiah, Vijaya Sng, Andrew Anjian Lai, Lester Yousheng Lee, Yung Seng Griva, Konstadina Lee Kong Chian School of Medicine (LKCMedicine) Science::Medicine Agreement Parent Purpose Consideration of health-related quality of life (HRQoL) and wellbeing outcomes is important to guide healthcare services for youth with obesity, yet youth perspectives may difer from their parents. This study compared youth and parental HRQoL reports and evaluated levels of concordance across HRQoL domains and as a function of youth age, youth gender and parent informant (mother and father). Methods 376 youths with obesity, recruited from community (N=223) and hospital settings (N=153), and their parents (N=190 mothers; N=91 fathers), completed the PedsQL. Parental and youth agreement across subgroup dyads (mother; father; child gender; child age) were evaluated using Wilcoxon signed-rank test, intra-correlations coefcients (ICCs) and Bland–Altman plots. Results Compared to norms, HRQoL levels (youth self-report and parental proxy reports) were lower in all domains. Both mother and fathers’ HRQoL reports were signifcantly lower than youths, most notably in physical HRQoL. Youth–parent concordance ranged from poor to moderate (ICC=0.230–0.618), with lowest agreement for Physical HRQOL. Mothers were better proxies with ICCs being signifcant in all domains. Youth-father ICCs were signifcant only for Social (ICC=0.428) and School (ICC=0.303) domains. Girl–mother agreement was signifcant across all domains, while girl–father agreement was signifcant only in the Social domain (ICC=0.653). Both mothers and fathers were poor raters for boys, and younger youths (aged ≤12), with non-signifcant ICCs in most HRQoL domains. Conclusions Parents are poor surrogates for youth HRQoL. Clinicians should be cognizant that parents are not necessarily accurate proxies for youths, and exercise caution when interpreting parent-proxy scores. National Medical Research Council (NMRC) This study is supported by funding from National Medical Research Council-Clinician Scientist Research Grant (NMRC/ CIRG/1407/2014). 2022-08-19T04:02:03Z 2022-08-19T04:02:03Z 2020 Journal Article Ooi, D. S. Q., Loke, K. Y., Ho, C. W. L., Lim, Y. Y., Tay, V., Karuppiah, V., Sng, A. A., Lai, L. Y., Lee, Y. S. & Griva, K. (2020). Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates?. Quality of Life Research, 29(8), 2171-2181. https://dx.doi.org/10.1007/s11136-020-02472-y 0962-9343 https://hdl.handle.net/10356/161197 10.1007/s11136-020-02472-y 32170585 2-s2.0-85082120332 8 29 2171 2181 en NMRC/CIRG/1407/2014 Quality of Life Research © 2020 Springer Nature Switzerland AG. All rights reserved. |
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Science::Medicine Agreement Parent Ooi, Delicia Shu Qin Loke, Kah Yin Ho, Cindy Wei Li Lim, Yvonne Yijuan Tay, Veronica Karuppiah, Vijaya Sng, Andrew Anjian Lai, Lester Yousheng Lee, Yung Seng Griva, Konstadina Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
description |
Purpose Consideration of health-related quality of life (HRQoL) and wellbeing outcomes is important to guide healthcare
services for youth with obesity, yet youth perspectives may difer from their parents. This study compared youth and parental
HRQoL reports and evaluated levels of concordance across HRQoL domains and as a function of youth age, youth gender
and parent informant (mother and father).
Methods 376 youths with obesity, recruited from community (N=223) and hospital settings (N=153), and their parents
(N=190 mothers; N=91 fathers), completed the PedsQL. Parental and youth agreement across subgroup dyads (mother;
father; child gender; child age) were evaluated using Wilcoxon signed-rank test, intra-correlations coefcients (ICCs) and
Bland–Altman plots.
Results Compared to norms, HRQoL levels (youth self-report and parental proxy reports) were lower in all domains. Both
mother and fathers’ HRQoL reports were signifcantly lower than youths, most notably in physical HRQoL. Youth–parent
concordance ranged from poor to moderate (ICC=0.230–0.618), with lowest agreement for Physical HRQOL. Mothers were
better proxies with ICCs being signifcant in all domains. Youth-father ICCs were signifcant only for Social (ICC=0.428)
and School (ICC=0.303) domains. Girl–mother agreement was signifcant across all domains, while girl–father agreement
was signifcant only in the Social domain (ICC=0.653). Both mothers and fathers were poor raters for boys, and younger
youths (aged ≤12), with non-signifcant ICCs in most HRQoL domains.
Conclusions Parents are poor surrogates for youth HRQoL. Clinicians should be cognizant that parents are not necessarily
accurate proxies for youths, and exercise caution when interpreting parent-proxy scores. |
author2 |
Lee Kong Chian School of Medicine (LKCMedicine) |
author_facet |
Lee Kong Chian School of Medicine (LKCMedicine) Ooi, Delicia Shu Qin Loke, Kah Yin Ho, Cindy Wei Li Lim, Yvonne Yijuan Tay, Veronica Karuppiah, Vijaya Sng, Andrew Anjian Lai, Lester Yousheng Lee, Yung Seng Griva, Konstadina |
format |
Article |
author |
Ooi, Delicia Shu Qin Loke, Kah Yin Ho, Cindy Wei Li Lim, Yvonne Yijuan Tay, Veronica Karuppiah, Vijaya Sng, Andrew Anjian Lai, Lester Yousheng Lee, Yung Seng Griva, Konstadina |
author_sort |
Ooi, Delicia Shu Qin |
title |
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
title_short |
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
title_full |
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
title_fullStr |
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
title_full_unstemmed |
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates? |
title_sort |
self and parent-proxy rated health-related quality of life (hrqol) in youth with obesity: are parents good surrogates? |
publishDate |
2022 |
url |
https://hdl.handle.net/10356/161197 |
_version_ |
1743119576828215296 |