Paradox of possibilities: the rare landscape in the Asia Pacific Region

• المؤلفون الرئيسيون: Jain, Ritu, Wang, Mary Chiuhui, Foster, Lisa, Li, Eileen Yangyang, Nishimura, Yukiko, Tsang, Kin Ping
• مؤلفون آخرون: School of Humanities
• التنسيق: مقال
• اللغة: English
• منشور في: 2024
• الموضوعات: Medicine, Health and Life Sciences; RDs; Patient organizations; Asia-Pacific; Policy; Diversity
• الوصول للمادة أونلاين: https://hdl.handle.net/10356/173850
• المؤسسة: Nanyang Technological University

The Asia-Pacific (APAC) region, home to 60% of the global population, has the highest number of Persons Living with a rare disease (PLWRD). To promote more equitable societies, the Asia Pacific rare disease Organization (APARDO), established in 2015, has been developing its regional position to prom...