Protocol for stage 1 of the GaP study (Genetic testing acceptability for Paget's disease of bone): An interview study about genetic testing and preventive treatment: would relatives of people with Paget's disease want testing and treatment if they were available?

• Main Authors: Langston, A.L, Johnston, M, Robertson, C, Campbell, M.K, Entwistle, V.A, Marteau, T.M, McCallum, M, Ralston, S.H
• Other Authors: DEAN'S OFFICE (MEDICINE)
• Format: Article
• Published: 2020
• Subjects: article; controlled study; family; genetic analysis; genetic screening; geography; human; interview; major clinical study; Paget bone disease; patient attitude; prophylaxis; questionnaire; United Kingdom; adult; aged; attitude to health; clinical protocol; cohort analysis; etiology; genetic counseling; genetic predisposition; genetics; health behavior; human relation; male; methodology; middle aged; Osteitis Deformans; osteolysis; pathophysiology; psychological model; psychology; Adult; Aged; Attitude to Health; Bone Resorption; Clinical Protocols; Cohort Studies; Family; Genetic Counseling; Genetic Predisposition to Disease; Genetic Testing; Great Britain; Health Behavior; Humans; Intergenerational Relations; Interviews as Topic; Male; Middle Aged; Models, Psychological; Patient Acceptance of Health Care; Research Design
• Online Access: https://scholarbank.nus.edu.sg/handle/10635/178017
• Institution: National University of Singapore

10.1186/1472-6963-6-71