Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review

Down Syndrome Parents' Support Group Siriraj Hospital was established on February 14, 1993. It consists of a group of pediatricians, nurses, parents of children with Down Syndrome (DS) who received care at the Genetics Clinic, Division of Medical Genetics, Department of Pediatrics, Faculty of M...

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Main Authors: Pornswan Wasant, Chaiyan Rajchagool
Other Authors: Mahidol University
Format: Review
Published: 2018
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Online Access:https://repository.li.mahidol.ac.th/handle/123456789/27967
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spelling th-mahidol.279672018-09-13T13:55:46Z Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review Pornswan Wasant Chaiyan Rajchagool Mahidol University Payap University Medicine Down Syndrome Parents' Support Group Siriraj Hospital was established on February 14, 1993. It consists of a group of pediatricians, nurses, parents of children with Down Syndrome (DS) who received care at the Genetics Clinic, Division of Medical Genetics, Department of Pediatrics, Faculty of Medicine Siriraj Hospital. The objective is to educate parents with DS children whose diagnosis of DS given at birth causing grief and disappointment which led to abandonment of these children at Siriraj Hospital almost every other month (fifteen years ago) due to lack of education on the part of the medical professionals. Down Syndrome Parents' Support Group Siriraj Hospital received financial support from Terres des hommes of the Netherlands in the first 6 years. Later it received partial financial support from a government agency; however, the majority of the funding came from private donations. Throughout the years, the group had several successful activities: Siriraj Down Syndrome Annual Meeting since 1991 (total of 17 years) and Down Syndrome Provincial Lecture tour, so called "Down Sunjorn" since 1997. The latest in 2008 (the tenth) which was organized with major provincial hospitals of the Ministry of Public Health (MOPH). Moreover, the group took part in (1) working with the Ministry of Education for Thailand Educational Act B.E. 1999 which promotes integration of DS children into normal schools all over the country, (2) working with the Department of Maternal & Child Health, MOPH started the Child Development Center in the provincial community hospitals where the service was lacking; (3) working with Ministry of Social Development' and Human Security to initiate an educational program for the DS families in the rural areas (from 2001 - 2006) to help educate families with DS children and raise awareness for their educational & legal rights. In the past 15 years, there was no more abandonment of DS children at Siriraj Hospital and others; these children received better care and improved quality of life. 2018-09-13T06:55:46Z 2018-09-13T06:55:46Z 2009-09-01 Review Journal of the Medical Association of Thailand. Vol.92, No.9 (2009), 1256-1262 01252208 01252208 2-s2.0-70349272222 https://repository.li.mahidol.ac.th/handle/123456789/27967 Mahidol University SCOPUS https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=70349272222&origin=inward
institution Mahidol University
building Mahidol University Library
continent Asia
country Thailand
Thailand
content_provider Mahidol University Library
collection Mahidol University Institutional Repository
topic Medicine
spellingShingle Medicine
Pornswan Wasant
Chaiyan Rajchagool
Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
description Down Syndrome Parents' Support Group Siriraj Hospital was established on February 14, 1993. It consists of a group of pediatricians, nurses, parents of children with Down Syndrome (DS) who received care at the Genetics Clinic, Division of Medical Genetics, Department of Pediatrics, Faculty of Medicine Siriraj Hospital. The objective is to educate parents with DS children whose diagnosis of DS given at birth causing grief and disappointment which led to abandonment of these children at Siriraj Hospital almost every other month (fifteen years ago) due to lack of education on the part of the medical professionals. Down Syndrome Parents' Support Group Siriraj Hospital received financial support from Terres des hommes of the Netherlands in the first 6 years. Later it received partial financial support from a government agency; however, the majority of the funding came from private donations. Throughout the years, the group had several successful activities: Siriraj Down Syndrome Annual Meeting since 1991 (total of 17 years) and Down Syndrome Provincial Lecture tour, so called "Down Sunjorn" since 1997. The latest in 2008 (the tenth) which was organized with major provincial hospitals of the Ministry of Public Health (MOPH). Moreover, the group took part in (1) working with the Ministry of Education for Thailand Educational Act B.E. 1999 which promotes integration of DS children into normal schools all over the country, (2) working with the Department of Maternal & Child Health, MOPH started the Child Development Center in the provincial community hospitals where the service was lacking; (3) working with Ministry of Social Development' and Human Security to initiate an educational program for the DS families in the rural areas (from 2001 - 2006) to help educate families with DS children and raise awareness for their educational & legal rights. In the past 15 years, there was no more abandonment of DS children at Siriraj Hospital and others; these children received better care and improved quality of life.
author2 Mahidol University
author_facet Mahidol University
Pornswan Wasant
Chaiyan Rajchagool
format Review
author Pornswan Wasant
Chaiyan Rajchagool
author_sort Pornswan Wasant
title Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
title_short Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
title_full Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
title_fullStr Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
title_full_unstemmed Down syndrome parents' support group in Thailand Siriraj Hospital, fifteen years experience: A review
title_sort down syndrome parents' support group in thailand siriraj hospital, fifteen years experience: a review
publishDate 2018
url https://repository.li.mahidol.ac.th/handle/123456789/27967
_version_ 1763491966873501696