Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study
To conduct a multi-center prospective study over more than one year requires an efficient system that can synchronize collection of data from several sources in real-time and facilitate remote data management. This paper describes the design and use of an in-house data collection and sample informat...
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th-mahidol.739092022-08-04T11:19:06Z Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study Ratchaneewan Sinitkul Richard J. Maude Ussanai Nithirochananont Faculty of Tropical Medicine, Mahidol University Public Health England Geo-Informatics and Space Technology Development Agency Harvard T.H. Chan School of Public Health Faculty of Medicine Ramathibodi Hospital, Mahidol University Nuffield Department of Medicine Engineering Health Professions Medicine To conduct a multi-center prospective study over more than one year requires an efficient system that can synchronize collection of data from several sources in real-time and facilitate remote data management. This paper describes the design and use of an in-house data collection and sample information management system that was used in a prospective birth cohort study in Thailand. Participants were enrolled from three hospitals and were required to visit their respective hospital and complete self-administered questionnaires (SAQ) at every visit. The in-house informatics system required integration of the data collection streams that can handle three different types of data (SAQ, clinical record, and laboratory sample tracking). The system has been implemented in the pilot phase of a birth cohort study and has demonstrated its usability for further application to an expanded study. 2022-08-04T03:58:18Z 2022-08-04T03:58:18Z 2022-06-06 Conference Paper Studies in Health Technology and Informatics. Vol.290, (2022), 125-129 10.3233/SHTI220045 18798365 09269630 2-s2.0-85131474425 https://repository.li.mahidol.ac.th/handle/123456789/73909 Mahidol University SCOPUS https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85131474425&origin=inward |
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Engineering Health Professions Medicine Ratchaneewan Sinitkul Richard J. Maude Ussanai Nithirochananont Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
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To conduct a multi-center prospective study over more than one year requires an efficient system that can synchronize collection of data from several sources in real-time and facilitate remote data management. This paper describes the design and use of an in-house data collection and sample information management system that was used in a prospective birth cohort study in Thailand. Participants were enrolled from three hospitals and were required to visit their respective hospital and complete self-administered questionnaires (SAQ) at every visit. The in-house informatics system required integration of the data collection streams that can handle three different types of data (SAQ, clinical record, and laboratory sample tracking). The system has been implemented in the pilot phase of a birth cohort study and has demonstrated its usability for further application to an expanded study. |
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Faculty of Tropical Medicine, Mahidol University |
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Faculty of Tropical Medicine, Mahidol University Ratchaneewan Sinitkul Richard J. Maude Ussanai Nithirochananont |
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Conference or Workshop Item |
author |
Ratchaneewan Sinitkul Richard J. Maude Ussanai Nithirochananont |
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Ratchaneewan Sinitkul |
title |
Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
title_short |
Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
title_full |
Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
title_fullStr |
Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
title_full_unstemmed |
Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study |
title_sort |
design of an integrated clinical research informatics system for a multi-centre and multi-visit prospective birth cohort study |
publishDate |
2022 |
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https://repository.li.mahidol.ac.th/handle/123456789/73909 |
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1763488698219888640 |