Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study

Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study

10.1371/journal.pone.0159326

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Bibliographic Details
Main Authors:	Knowles R.L., Tadic V., Hogan A., Bull C., Rahi J.S., Dezateux C., Craig B., Wright J., Martin R., Kenny D., Daubeney P., Rigby M., Magee A., Shinebourne E., Wilson D., Wong A., Burns J., Houston A., Sullivan I., Rees P., Elliott M., Derrick G., Qureshi S., Rosenthal E., Franklin R., Dickinson D., Gibbs J., Bu'lock F., Kitchener D., Lim J., Malaiya N., Thakker P., Adwani S., Keeton B., Salmon A.
Other Authors:	PAEDIATRICS
Format:	Article
Published:	Public Library of Science 2020
Subjects:	adolescent Article child clinical practice cohort analysis congenital heart malformation controlled study coping behavior daily life activity disease classification disease severity female health care quality heart function human major clinical study male medical information system outcome assessment personal experience prognosis quality of life questionnaire sex difference social isolation patient participation patient-reported outcome psychology self report Adaptation, Psychological Adolescent Child Cohort Studies Female Heart Defects, Congenital Humans Male Patient Participation Patient Reported Outcome Measures Quality of Life Self Report
Online Access:	https://scholarbank.nus.edu.sg/handle/10635/165741
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Institution:	National University of Singapore

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Summary:	10.1371/journal.pone.0159326