Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study

10.1371/journal.pone.0159326

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Main Authors:	Knowles R.L., Tadic V., Hogan A., Bull C., Rahi J.S., Dezateux C., Craig B., Wright J., Martin R., Kenny D., Daubeney P., Rigby M., Magee A., Shinebourne E., Wilson D., Wong A., Burns J., Houston A., Sullivan I., Rees P., Elliott M., Derrick G., Qureshi S., Rosenthal E., Franklin R., Dickinson D., Gibbs J., Bu'lock F., Kitchener D., Lim J., Malaiya N., Thakker P., Adwani S., Keeton B., Salmon A.
Other Authors:	PAEDIATRICS
Format:	Article
Published:	Public Library of Science 2020
Subjects:	adolescent Article child clinical practice cohort analysis congenital heart malformation controlled study coping behavior daily life activity disease classification disease severity female health care quality heart function human major clinical study male medical information system outcome assessment personal experience prognosis quality of life questionnaire sex difference social isolation patient participation patient-reported outcome psychology self report Adaptation, Psychological Adolescent Child Cohort Studies Female Heart Defects, Congenital Humans Male Patient Participation Patient Reported Outcome Measures Quality of Life Self Report
Online Access:	https://scholarbank.nus.edu.sg/handle/10635/165741
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Institution:	National University of Singapore

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spelling	sg-nus-scholar.10635-1657412024-04-24T06:52:18Z Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study Knowles R.L. Tadic V. Hogan A. Bull C. Rahi J.S. Dezateux C. Craig B. Wright J. Martin R. Kenny D. Daubeney P. Rigby M. Magee A. Shinebourne E. Wilson D. Wong A. Burns J. Houston A. Sullivan I. Rees P. Elliott M. Derrick G. Qureshi S. Rosenthal E. Franklin R. Dickinson D. Gibbs J. Bu'lock F. Kitchener D. Lim J. Malaiya N. Thakker P. Adwani S. Keeton B. Salmon A. PAEDIATRICS adolescent Article child clinical practice cohort analysis congenital heart malformation controlled study coping behavior daily life activity disease classification disease severity female health care quality heart function human major clinical study male medical information system outcome assessment personal experience prognosis quality of life questionnaire sex difference social isolation congenital heart malformation coping behavior patient participation patient-reported outcome psychology self report Adaptation, Psychological Adolescent Child Cohort Studies Female Heart Defects, Congenital Humans Male Patient Participation Patient Reported Outcome Measures Quality of Life Self Report 10.1371/journal.pone.0159326 PLoS ONE 11 8 e0159326 2020-03-19T07:47:11Z 2020-03-19T07:47:11Z 2016 Article Knowles R.L., Tadic V., Hogan A., Bull C., Rahi J.S., Dezateux C., Craig B., Wright J., Martin R., Kenny D., Daubeney P., Rigby M., Magee A., Shinebourne E., Wilson D., Wong A., Burns J., Houston A., Sullivan I., Rees P., Elliott M., Derrick G., Qureshi S., Rosenthal E., Franklin R., Dickinson D., Gibbs J., Bu'lock F., Kitchener D., Lim J., Malaiya N., Thakker P., Adwani S., Keeton B., Salmon A. (2016). Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study. PLoS ONE 11 (8) : e0159326. ScholarBank@NUS Repository. https://doi.org/10.1371/journal.pone.0159326 19326203 https://scholarbank.nus.edu.sg/handle/10635/165741 Public Library of Science Unpaywall 20200320
institution	National University of Singapore
building	NUS Library
continent	Asia
country	Singapore Singapore
content_provider	NUS Library
collection	ScholarBank@NUS
topic	adolescent Article child clinical practice cohort analysis congenital heart malformation controlled study coping behavior daily life activity disease classification disease severity female health care quality heart function human major clinical study male medical information system outcome assessment personal experience prognosis quality of life questionnaire sex difference social isolation congenital heart malformation coping behavior patient participation patient-reported outcome psychology self report Adaptation, Psychological Adolescent Child Cohort Studies Female Heart Defects, Congenital Humans Male Patient Participation Patient Reported Outcome Measures Quality of Life Self Report
spellingShingle	adolescent Article child clinical practice cohort analysis congenital heart malformation controlled study coping behavior daily life activity disease classification disease severity female health care quality heart function human major clinical study male medical information system outcome assessment personal experience prognosis quality of life questionnaire sex difference social isolation congenital heart malformation coping behavior patient participation patient-reported outcome psychology self report Adaptation, Psychological Adolescent Child Cohort Studies Female Heart Defects, Congenital Humans Male Patient Participation Patient Reported Outcome Measures Quality of Life Self Report Knowles R.L. Tadic V. Hogan A. Bull C. Rahi J.S. Dezateux C. Craig B. Wright J. Martin R. Kenny D. Daubeney P. Rigby M. Magee A. Shinebourne E. Wilson D. Wong A. Burns J. Houston A. Sullivan I. Rees P. Elliott M. Derrick G. Qureshi S. Rosenthal E. Franklin R. Dickinson D. Gibbs J. Bu'lock F. Kitchener D. Lim J. Malaiya N. Thakker P. Adwani S. Keeton B. Salmon A. Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
description	10.1371/journal.pone.0159326
author2	PAEDIATRICS
author_facet	PAEDIATRICS Knowles R.L. Tadic V. Hogan A. Bull C. Rahi J.S. Dezateux C. Craig B. Wright J. Martin R. Kenny D. Daubeney P. Rigby M. Magee A. Shinebourne E. Wilson D. Wong A. Burns J. Houston A. Sullivan I. Rees P. Elliott M. Derrick G. Qureshi S. Rosenthal E. Franklin R. Dickinson D. Gibbs J. Bu'lock F. Kitchener D. Lim J. Malaiya N. Thakker P. Adwani S. Keeton B. Salmon A.
format	Article
author	Knowles R.L. Tadic V. Hogan A. Bull C. Rahi J.S. Dezateux C. Craig B. Wright J. Martin R. Kenny D. Daubeney P. Rigby M. Magee A. Shinebourne E. Wilson D. Wong A. Burns J. Houston A. Sullivan I. Rees P. Elliott M. Derrick G. Qureshi S. Rosenthal E. Franklin R. Dickinson D. Gibbs J. Bu'lock F. Kitchener D. Lim J. Malaiya N. Thakker P. Adwani S. Keeton B. Salmon A.
author_sort	Knowles R.L.
title	Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
title_short	Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
title_full	Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
title_fullStr	Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
title_full_unstemmed	Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study
title_sort	self-reported health experiences of children living with congenital heart defects: including patient-reported outcomes in a national cohort study
publisher	Public Library of Science
publishDate	2020
url	https://scholarbank.nus.edu.sg/handle/10635/165741
_version_	1800913928406958080

Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study

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