Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents
Non-speaking autistic individuals grapple with the profound impact of the 'double empathy problem' in their daily interactions with speaking others. This study rethinks the communication challenges faced by non-speaking autistic individuals, challenging traditional approaches that predomin...
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sg-ntu-dr.10356-1789922024-07-20T16:56:27Z Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents Chen, Rachel S. Y. School of Humanities Arts and Humanities Autism Neurodiversity Non-speaking autistic individuals grapple with the profound impact of the 'double empathy problem' in their daily interactions with speaking others. This study rethinks the communication challenges faced by non-speaking autistic individuals, challenging traditional approaches that predominantly focus on speech and complex communication devices (AAC). By spotlighting the natural phenomenon of "interactive stimming," a powerful mode of communication among autistic individuals, this study advocates for a shift from a conventional emphasis on speech towards the foundational role of the body in autistic communication. Central to this exploration is the introduction of the Magical Musical Mat (MMM), an innovative interactive environment mapping interpersonal touch to musical sounds. Through a robust mixed-methods approach integrating video-based fieldwork and design-based research, this paper engages three non-speaking autistic children and their mothers in a 5-day empirical intervention. Results reveal significant transformations in parent-child interactions as both parents and children are acquainted with touch in a new environment. Children assert their autonomy, exploring at their own pace, and discovering sensory features of the environment. Notably, the introduction of sound prompts heightened awareness of the stims, leading to diversified and expressive stim movements. Foregrounding interpersonal touch eventually guides parents into their children's sensory activities where parents attune to the stims of their children by joining in and facilitating their expressiveness, co-creating extended, evolving patterns of repetitive cycles. The collaborative stim cycles can be likened to free improvisation, where dynamical coherence between individuals occurs through a blend of stability and active flexibility. By shifting the focus from speech to co-created sensory experiences, this paper sheds light on the value of transformative multisensory environments, envisioning a world where varied modes of communication are valued and embraced. Ministry of Education (MOE) Nanyang Technological University Published version The author(s) declare that financial support was received for the research, authorship, and/or publication of this article. This research has received funding from the Barbara White Bequest, Berkeley Center for New Media, the Jacobs Institute Innovation Catalysts grant, Institute for Cognitive and Brain Sciences, and was supported by the Humanities International Ph.D Scholarship. At Nanyang Technological University, this research is being supported by the NTU start-up grant (SUG2023) and the MOE Tier 1 grant (RS18/23). 2024-07-15T07:42:07Z 2024-07-15T07:42:07Z 2024 Journal Article Chen, R. S. Y. (2024). Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents. Frontiers in Integrative Neuroscience, 18, 1374882-. https://dx.doi.org/10.3389/fnint.2024.1374882 1662-5145 https://hdl.handle.net/10356/178992 10.3389/fnint.2024.1374882 38841109 2-s2.0-85195091387 18 1374882 en SUG2023 RS18/23 Frontiers in Integrative Neuroscience © 2024 Chen. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. application/pdf |
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Arts and Humanities Autism Neurodiversity Chen, Rachel S. Y. Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
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Non-speaking autistic individuals grapple with the profound impact of the 'double empathy problem' in their daily interactions with speaking others. This study rethinks the communication challenges faced by non-speaking autistic individuals, challenging traditional approaches that predominantly focus on speech and complex communication devices (AAC). By spotlighting the natural phenomenon of "interactive stimming," a powerful mode of communication among autistic individuals, this study advocates for a shift from a conventional emphasis on speech towards the foundational role of the body in autistic communication. Central to this exploration is the introduction of the Magical Musical Mat (MMM), an innovative interactive environment mapping interpersonal touch to musical sounds. Through a robust mixed-methods approach integrating video-based fieldwork and design-based research, this paper engages three non-speaking autistic children and their mothers in a 5-day empirical intervention. Results reveal significant transformations in parent-child interactions as both parents and children are acquainted with touch in a new environment. Children assert their autonomy, exploring at their own pace, and discovering sensory features of the environment. Notably, the introduction of sound prompts heightened awareness of the stims, leading to diversified and expressive stim movements. Foregrounding interpersonal touch eventually guides parents into their children's sensory activities where parents attune to the stims of their children by joining in and facilitating their expressiveness, co-creating extended, evolving patterns of repetitive cycles. The collaborative stim cycles can be likened to free improvisation, where dynamical coherence between individuals occurs through a blend of stability and active flexibility. By shifting the focus from speech to co-created sensory experiences, this paper sheds light on the value of transformative multisensory environments, envisioning a world where varied modes of communication are valued and embraced. |
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School of Humanities |
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School of Humanities Chen, Rachel S. Y. |
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Article |
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Chen, Rachel S. Y. |
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Chen, Rachel S. Y. |
title |
Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
title_short |
Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
title_full |
Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
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Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
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Bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
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bridging the gap: fostering interactive stimming between non-speaking autistic children and their parents |
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2024 |
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https://hdl.handle.net/10356/178992 |
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